I went to a nurologist to receive a nerve test to determine if nerve damage was the result of this insistent warmer month pain I am getting. The test was negative. After talking to my Doctor he thought that my feet were just deveoping some sort of symptom as life would have it, until I mentioned I had nodules in my feet. He said this was the casue of my burning feet. He gave me medicine that avoids the signal from the nerve to the brain such as neurontin. It doesnt work.
Now I am reading on-line all these possible diseases or syndromes that may be relevant.
Does anyone out there with ledderhose disease have this burning feeling in the feet, only when the warm months occur, only at night when I take my footwear off and am relaxed in bed??
you might serach our forum (left menu, "Search forum") for posts about burning feet. It's probably sufficient to search for "burning" ind the Ledderhose board.
I can say that this is not something that I suffer from. I do get it very painful but actually mine is worse when it is cold rather than when it is hot. But then everyone seems to suffer from this is different ways.
I have the same problem. My feet get that itchy, burning, tingly, strange sensation very often, tingling almost constant. They are also very red from time to time. I prefer to walk barefoot, the moment I put on shoes this crazy sensation will start or when I walk more than 2+ miles, then the sensation becomes very intense. I put my feet up and that will calm things down, not always though. That burning sensation seems to be mentioned a lot.
Hi Christl, Gary and Mr T I had problems with nerve sensations including aching, tingling and burning, which intensified immediately following RT, resulting in burning and redness but settled down gradually over 6 months post RT and has completely gone (1 year later). Someone medically trained suggested the nerves don't mind being pulled, but definitely don't like it when they are pressured or pushed. It could be that during the growth stages of this condition, the nerves are aggravated by the pressure. Hang in there - I'm sure that it will get better eventually or the treatment will help to settle things down :) Di
Christl:I have the same problem. My feet get that itchy, burning, tingly, strange sensation very often, tingling almost constant. They are also very red from time to time. I prefer to walk barefoot, the moment I put on shoes this crazy sensation will start or when I walk more than 2+ miles, then the sensation becomes very intense. I put my feet up and that will calm things down, not always though. That burning sensation seems to be mentioned a lot.
Hello Di, Thanks for your reply, as always, very much appreciated. I am very happy to read that your feet are feeling better und you can go on with your life. I am in some kind of limbo right now. I assume my feet are active, which means I should dash to Germany, but I just got back from my last RT -hands- treatment in early December last year. Then, my feet were not ready for RT. I also know, things can change realy fast und time is of the essence. My nodules have gotten very hard and seems cords forming above my nodules, they can now be felt even when foot is relaxed. I wonder, if those cords are giving me that stinging sensation in the ball of my foot when I walk?
This is all so frustrating. We are so on our own, besides this forum, which I am very thankful about. Anyway, glad all is well with you. Are you still cycling? I switched to a stationary bike, don't need to use my hands this way. I do miss going out for a good ride.
Hi Christl Yes, my nodules developed the same way as you describe and it sounds as though you are experiencing similar symptoms. It might be a good idea to consult Prof S re your timeline for treatment.
I had the stinging sensation in the ball of my feet, which turned out to be nerve pain associated with stretching the tendon. Others have reported the same limitation and have had to adjust some activities such as yoga. Just watch pulling toes back /standing on tippy toes. It might help to scrunch your toes as though you are picking something up with your toes, if you require some relief, rather than pulling them backwards, which for me was a natural urge I experienced as the tendon tightened. Also, the sports physician I consulted explained the act of walking stretches the tendon (when the foot pronates slightly when you put weight on your foot each step), which explained why overdoing the walking resulted in the same nervy pain.
It might be worth some experimenting to see if you are able to find some ways to limit the discomfort. Following treatment, I find I can comfortably do about 40 minutes of walking for exercise each day (on top of 'normal' activity = not too much on my feet!) without the nerve pain setting in. You may also take comfort in the fact that, when i do get that nervy pain now, it doesn't bother me as much as when the condition was actively progressing
All the best of luck Di
Christl:Hello Di, Thanks for your reply, as always, very much appreciated. I am very happy to read that your feet are feeling better und you can go on with your life. I am in some kind of limbo right now. I assume my feet are active, which means I should dash to Germany, but I just got back from my last RT -hands- treatment in early December last year. Then, my feet were not ready for RT. I also know, things can change realy fast und time is of the essence. My nodules have gotten very hard and seems cords forming above my nodules, they can now be felt even when foot is relaxed. I wonder, if those cords are giving me that stinging sensation in the ball of my foot when I walk?
This is all so frustrating. We are so on our own, besides this forum, which I am very thankful about. Anyway, glad all is well with you. Are you still cycling? I switched to a stationary bike, don't need to use my hands this way. I do miss going out for a good ride.
Your description has me looking again at what I self-diagnosed as a slight sprain of my foot during a yoga class at the end of March. I'm thinking it still may have been a sprain, because the pain I felt was somewhere in the top of my foot. However, as I was feeling my foot about 2 weeks afterwards, I noticed what seems like nodules forming near a tendon along the inside of my arch. I have very high arches and thin feet.
Now I'm wondering, - Do I have Ledderhose's or not, (I will have Dr. K check when I go back, next week. I'm having the MRI on my hand this morning. He checked my feet 6 months and there was nothing going on that I felt or that he felt.) - Did I sprain my foot and trigger Ledderhose's, or - Was Ledderhose's that caused a sprain or the pain.
I've already got Dupuytren's. Mr. Leddeerhose, I don't need you.
I am having 2 small nodules in the arch of my foot and had them for about 10 years. The are fairly stable (not quite, I didn't have them when I was younger ...) and they don't really bother me. While I have had Dupuytren's since more than 30 years and went through all sorts of treatments, Ledderhose hasn't been an issue so far. So, take it easy, it might not be a problem.
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