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looking for info (desperate)
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04/14/2017 22:56
dchandler7 
04/14/2017 22:56
dchandler7 
looking for info (desperate)

I recently got ledderhose disease with painful cords and noudles on both feet. I have been looking on internet and can't find very much info about any procedure to remove them. I am quite devastated, as they appeared almost over night.I was wondering if anybody has experience with removing the cords or what procedure helps? Also, I am currently live in Toronto, and was wondering if anybody knows of any podiatrists in Canada that deal with this disease (or have experience). Any info or help would be greatly appreciated as I am desperate unfortunately

04/15/2017 04:33
MikeNinerSeven 
04/15/2017 04:33
MikeNinerSeven 
Re: looking for info (desperate)

Hi dchandler7,

I too have some nodules in both my hands and feet. There is hope but no foolproof solution. I had my hands treated with radiation first in Germany and then in Vancouver at the cancer clinic.

Another thing that I think has helped is going from two glasses of wine a night or one beer and the occasional scotch to drinking next to no alcohol. People on this board may disagree but I think it helped slow the progression dramatically.

Cutting the nodules out probably will not help but make things worse. Radiation, injections to reduce them from the inside out, these things I think are a better bet for the feet. (Injections being my top pick but I have not needed it yet.)

There is a study in the U.S. which is trying ascertain if the are really three causes of this set of diseases. I think it is probably but it is not proven yet.

Read, try things and keep as mobile as you can.

Good luck,
Mike

04/15/2017 06:02
wach 

Administrator

04/15/2017 06:02
wach 

Administrator

Re: looking for info (desperate)

Hi dchandler7,

do you have a firm diagnosis of Ledderhose or do you just consider it likely that it is Ledderhose? The reason I am asking is because Ledderhose usually develops fairly slowly, over months and years, and not over night. Before embarking on any therapy you need to have a definite diagnosis, otherwise you might be going the wrong route and do more damage than good.

Wolfgang

dchandler7:
I recently got ledderhose disease with painful cords and noudles on both feet. I have been looking on internet and can't find very much info about any procedure to remove them. I am quite devastated, as they appeared almost over night.I was wondering if anybody has experience with removing the cords or what procedure helps? Also, I am currently live in Toronto, and was wondering if anybody knows of any podiatrists in Canada that deal with this disease (or have experience). Any info or help would be greatly appreciated as I am desperate unfortunately

06/27/2017 23:20
My6sons 
06/27/2017 23:20
My6sons 
Re: looking for info (desperate)

Hmm, suddenly and overnight???? My Ledderhose in my left foot was a very slow growth. Now have one in my right foot that seems to be growing much quicker then the left.
If u go with surgery be aware that any research you do you will discover that there is a high reoccurrence of it returning. When mine was removed that particular pod doc said they rarely ever come back....he was so wrong.
Also research as much as you can of anything that can go wrong. Had I to do it again I wouldn't have okay'ed the surgery until I knew more. I've had so many drawbacks, mostly nerve damage, so much so I now walk with a cane. Sleep is a sweet dream.......
Research ur doc as well, n ask ask ask ask him every question u can think of.
Good luck!

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