Here is my immediate issue. I have nodules in my left and right foot. However I walk alot durung the day and I am begining to at times have considerable discomfort in my shin, knee and at times my hip.

Is this part of what this causes ?

Thanks
Rick

Rick - I agree 100% with Wolfgang.

I do believe you may be 'avoiding' the foot pain and compromising the way you stand, shift your weight and move about.

I did not notice, until I went to buy some Asics shoes, that I was walking on the outside of my feet. This happens over time, as you want to avoid the pain (or possible pain) of the growth nodules on your feet.

Good, padded shoes, like Asics top-of-the-line- shoes with Thorlo socks can help a bit. If possible, check with your MD, or specialist to perhaps get something for the pain, if it becomes too much. But, I think you should do something NOW, as you can possibly damage your legs, knees, by standing and walking unnaturally over time.

I agree with Wolfgang in his assessment of your problem. I fulllly understand, believe me. I have dealt with LD and DC for over 25 years now. One more thing = operations on the hand ? OK with a good doc/plastic surgeon. The feet ? AVOID, unless absolutely critical. The feet have thousands of nerves, vessels, etc, pain receptors and even the very best (of which I've been too myself) say that there is quote "no guarantee" at all that the pain will improve OR the nodules will return en masse. AVOID messing with your feet. Disaster from everything I have read, and I've read and spoken with many, many peiople, some of who (in a moment of despair) decided to have their feet worked on. Mistake, in my opinion. Hand surgery has been mostly successful, but rate of recurrence can be high.

Hope you get some relief soon. Asics shoes are good, the drug Lyrica has helped with foot pain for some people, as well.

drumhead

Hi.
I have the same problem as Rick. I´m sure that it is the pain from the foot, from the nodules that is creating pain and tension in my hip and back. The pain in the foot is getting wors all the time. I have orthodics but it doesent help as musch as I want it to. It sounds like ther is help to get in USA but in Sweden they doesn´t care. They say it is´nt suppose to be painful.

Kajsa, Sweden

I was diagnosed in Nov 2011 with LD. Have it in both feet and DC in my hands in a period less than two years. Very aggressive. I had a nodule removed in 1997 and never had issues for years not sure if it was LD.

I can barely walk now after the surgeries. My feet pain all the time.. I rub voltaren creme on them for pain and take narcotics for the pain... The nodules were so painful so I opted for surgery.. not really sure it was a good idea.

Looking for alternate methods rather than surgery since I now have it again in my left foot and it seems since I had the surgery it's been agressively growing in my hands and feet... now I'm feeling pain through other parts of my body...

Is anyone truly having any luck with alternate treatments?

I would love to be pain free and able to walk again.. :o((