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New faster growing ledderhose nodule after surgery
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12/14/2010 15:30
Etienne 
12/14/2010 15:30
Etienne 
New faster growing ledderhose nodule after surgery

Hello !

I'm 28, i was diagnosed a ledderhose nodule in my left foot last year. I noticed this nodule 4 years ago but it was not big enough to worry anyone (doctors and me).

However with time, it has grown to the shape and size of a small "olive" (about 1cm diameter, 2cm long). So under the advise of a podologue and a surgeon, the nodule was removed 6 months ago with surgery.

Unfortunately a new one reappeared at the same place and is already as big as the original !!!

Now i'm realy wondering what i should do next ? I'm located in France, in Paris. Does someone know an expert in the Ledderhose disease that i could contact ? If you have any idea or advise, please don't hesitate to tell me.

Thanks,

Etienne

12/14/2010 15:48
wach 

Administrator

12/14/2010 15:48
wach 

Administrator

Re: New faster growing ledderhose nodule after surgery

Etienne,

welcome to the forum! We will try to help you, to the extent that this is possible via the Internet.

Unfortunately surgery of Ledderhose has a very high recurrence rate, so new surgery might make things even worse. There are not very many therapy options (you get an overview by clicking on Ledderhose disease on the left menu). Cryotherapy is occasionally used in the the USA and radiotherapy in Germany. Injection of cortizone typically helps for a couple of years and is painful.

The new nodule seems to be growing quicker than the old one, right? Then radiotherapy might be an option to at least slow down the growth.

Wolfgang

12/14/2010 17:02
Etienne 
12/14/2010 17:02
Etienne 
Re: New faster growing ledderhose nodule after surgery

Thanks for receiving me Wolfgang :)

Yes, the new nodule is growing very fast. It took only 6 months to grow and get annoying, that's why I'm feeling quite in a hurry.

I agree to avoid surgery this time, i read too many bad experiences on forums... I'm quite young (28) and thus i also fear therapies that could generate long term side effects..

Among the radiotherapy, cryotherapy and cortizone which ones are the safest ?

Etienne

12/15/2010 21:31
Issleib 
12/15/2010 21:31
Issleib 
Re: New faster growing ledderhose nodule after surgery

I'd start with radiation. I had both of my feet done four years ago now and have been very pleased wit the outcome.


There is more information if you click on Radiation therapy on the side bar

12/19/2010 16:44
LubaM. 
12/19/2010 16:44
LubaM. 
Re: New faster growing ledderhose nodule after surgery

I had two marble size hard nodules on the bottom of my left foot, I also had constant itching so I knew the disease was active and the nodules were getting bigger. I had radiation in Nov. 09.

Over one year later...the itching has stopped, the nodules are almost gone and I am happy there has been a stop to the progression, so far.

12/20/2010 20:33
Larry 
12/20/2010 20:33
Larry 
Excellent results with radiation !

Etienne:
Thanks for receiving me Wolfgang :)

Yes, the new nodule is growing very fast. It took only 6 months to grow and get annoying, that's why I'm feeling quite in a hurry.

I agree to avoid surgery this time, i read too many bad experiences on forums... I'm quite young (28) and thus i also fear therapies that could generate long term side effects..

Among the radiotherapy, cryotherapy and cortizone which ones are the safest ?

Etienne


Etienne , I can confirm that radiation therapy (done in Germany from Prof. Seegenschmiedt) was the best decision
which I have made in the whole process. I have had recently progression - but not in the irradiated feet ! - in the
unirradiated hands ! Thus, there is a "systemic force" in our body / genetics (?) which causes progression in the
untreated area, but radiation seems to protect the irradiated areas from progression ! So go for it ... Larry

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