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Progress on my daughters PF
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03/14/2011 08:31
ellensmum 
03/14/2011 08:31
ellensmum 
Progress on my daughters PF

Some of you may have read my previous forum message about my 7 year old adughter that has a trauma related Planter fibromatosis and i was very concerned about the option to re operate as suggested by her consultant.

while going through all the information among this forum and site i found something about massage with a tennis ball. we have started this - not using it when she is uncomfortable obviously and i have to say i am very surprised at the results so far.

The nodule has flattened not gone but definitely better. So much so that she actually did PE this week at school - first time in quite a few weeks,. She says she hardly feels it is there. we haven't used the tennis ball every day probally every 2-3 days depending on how it feels. I know my daughters case is different to naturally occuring Planter fibromatosis and possibly because she is so young the PF is not so hard and fibrous - i don't know but i just wanted to share this with you all.

So definitely no surgery for us here - not sure if we even need to see the consultant - but will wait until the appointment comes through and take it from there

Zoe

03/14/2011 09:29
Cyclist 
03/14/2011 09:29
Cyclist 

Re: Progress on my daughters PF

Hi Zoe
Thank you for your update - it's good news that Ellen can handle the tennis ball massage as it keeps the circulation going through the nodule so it doesn't get too hard and uncomfortable.

I use a tennis ball and also massage the nodules in both my feet twice a day. I have to touch them gently at first (especially first thing in the morning), but then as they de-sensitise, I find I can increase the pressure until they can handle a much firmer massage. If Ellen wants to give this a go, she might find it's easier to do this herself so she can adjust the pressure as required.

I would think about the tennis ball as providing relief and keeping the area as healthy as possible, rather than as a cure. It won't stop the progression, so it's important you still look at developing a long term treatment plan.

All the best
Di

03/20/2011 08:09
ellensmum 
03/20/2011 08:09
ellensmum 
Re: Progress on my daughters PF

Hi Di how are you getting on?

I think Greg and i are looking more towards the management side of this with the hope that maybe a few years down the line there may be some advancements in treatment - but it has given her enough relief that she is happy to do PE - although she then got hit on the head by a tennis racket and is sporting a very nice black eye this week!

Will let you know when we get further appointments and how we get on

Zoe

03/20/2011 11:44
Cyclist 
03/20/2011 11:44
Cyclist 

Re: Progress on my daughters PF

ellensmum:
Hi Di how are you getting on?

I think Greg and i are looking more towards the management side of this with the hope that maybe a few years down the line there may be some advancements in treatment - but it has given her enough relief that she is happy to do PE - although she then got hit on the head by a tennis racket and is sporting a very nice black eye this week!

Will let you know when we get further appointments and how we get on

Zoe

Hi Zoe
Thanks for the update! Yes, there's more to consider with one so young.

I'm getting on okay, thanks for asking - I've now had my first round of RT and it's been a little more difficult getting around and getting through work than usual, but I'm hoping it will settle down and start to get better soon

All the best to you and your family
Di

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