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What is the best way to detect early LD?
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02/21/2011 00:17
fjellver 
02/21/2011 00:17
fjellver 
What is the best way to detect early LD?

Hi,

I have DD in both hands that I am getting RT next week at MGH with Dr Delaney.
I am getting 5X3G then get it repeated in 6 weeks, if things go well.

My DD was stable until I had a climbing fall in October 2010, broke a cartlage rib, did the trauma and collagen healing of my rib start this growth of my DD?, an interesting aside. But, my feet starting hurting at that same time, so far I have only really tight plantar tendons and bilat plantar fascitis-no palpable nodules. Could this this be ealy LD?? No Docs I have met can tell me. I had an MRI of the worse foot and showed some thickening of the plantar fascia, nor unusal for active, athletic people according to the 2 podiatrists I saw.

My question is there a test like Ultrasound or CT that can tell me what is going on in my feet?
I had a neurological test that ruled out large nerve problems, Doc said I could have a perpheral neuropathy in my feet from "small nerve fiber problems", I am not a diabetic or alcoholic or take dilantin so I don't know.
I do know that my feet hurt, itch and burn alot, all over the soles but often in the plantar tendon and heel.

Any Thoughts?
Fjellver

02/21/2011 01:17
David26

not registered

02/21/2011 01:17
David26

not registered

Re: What is the best way to detect early LD?

Pretty interesting. My story is very similar. I have a pretty aggressive case of DD. A lot of nodules and appears I have cords/tightening in just about every finger on both hands. Only one finger has any noticeable contracture though. My feet started what I call "burning" at the same time my DD flared up. I did have some small nodules in the hands for a few years prior but they weren't active and I didn't know what they were at the time. When my DD went active, the nodules got large and painful pretty much overnight. Like I said, my feet started burning that same day.

Like you, I haven't noticed any nodules in the feet but I can tell I have some funny feelings and stuff going on with what I'm saying are the tendons and all. That and some numbness in the sole area. My doc says it is peripheral neuropathy and I also have no other conditions that would cause that. I think it is related to the DD. I sure hope it isn't early LD but it wouldn't be a great surprise if it was.

02/21/2011 04:06
Cyclist 
02/21/2011 04:06
Cyclist 

Re: What is the best way to detect early LD?

Hi there Fjellver
David 26 and I have chatted about a related issue in a different thread. I have a similar experience in reverse - when my feet flared up, my hands started aching and burning. I suspect my feet might be labeled as aggressive form when I see Prof Seegenschmiedt in a few weeks, as the nodules have grown very quickly in a short space of time and are quite large and active.

There could be a link and how frustrating that no-one appears to be studying it. Does anyone know what kind of doctor would look at this sort of thing? Would it be the benign tumour specialist? If so, then perhaps we should be asking them when we go for RT.

All the best
Di

Edited 02/21/11 06:07

02/21/2011 05:21
Larry 
02/21/2011 05:21
Larry 
GOOD EXAMINATION and IMAGING with MAGNETIC RESONANCE (MRI) !

I know they do MRI with a 3 Tesla machine in Hamburg at the clinic of Prof. Seegenschmiedt. Apparently it gives a very high resolution and detects the tissue changes earlier than with the conventional 1 Tesla machines. Ultrasound is an option but depends on the personal skills of the examiner ... and you need to have a doctor with experience in palpation !

Since I got Ledderhose Disease with all its unpleasant circumstances you all know, there were many doctors who saw the feet ... only few examined them with their hands and it was only ONE PERSON who took himself at least a minute to examine carefully each foot and theereafter - to my big surprise also my hands - and this person was the "PROF" who is now in Hamburg ! I was lucky to have met with him ...

At that time he detected early signs of Dupuytren in both my hands which I didn't really believed but he was right, about three years later it was obvious to me ... and I know MY HANDS well.

So in summary . ...

GOOD EXAMINATION and IMAGING with MAGNETIC RESONANCE (MRI) ! Larry

Edited 02/21/11 07:26

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frustrating   neuropathy   EXAMINATION   unpleasant   theereafter   contracture   nodules   neurological   experience   podiatrists   fascitis-no   circumstances   noticeable   Ultrasound   Ledderhose   Seegenschmiedt   tightening   interesting   conventional   aggressive