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01/10/2014 02:11
joshlin9693 
01/10/2014 02:11
joshlin9693 
More questions

Hello,

I finished up my 2nd round of RT in my right hand at the end of November. It seems that my first nodule and cord are flatter and staying the same size. Recently both hands are pretty sore. I am wondering if the poor diet over the holidays, as well as a lot of knitting might make them feel worse. I have no cords or nodules in the left palm, but have soreness in fingers and also in the fatty part of my lower palms. My hands just hurt when trying to do things like driving, opening doors or jars, sweeping, vacuuming... Just this week I noticed a new bump on the side of my left thumb at the lower knuckle and yesterday noticed a small bump in my right palm (place that was radiated) then just today noticed a fairly large, hard lump on the back of my right index finger. It's not on any knuckle, just on top toward the lower part of my finger.

Anyone think diet affects DC? And also, do nodules just pop up anywhere on the hand? Getting worried as I see and feel more things happening!

01/10/2014 20:19
Jolene 
01/10/2014 20:19
Jolene 
Re: More questions

Hello,

Have you contacted your oncologist to let him know of the new nodules that are forming?
Did you have radiation over the entire hand?
From wrist up to the PIP joints?
What was the break between round 1 and round 2? 6 weeks, 8 weeks, 12 weeks?

Please keep in mind I am no expert. I am just learning. So not to alarm you. But from what I am learning, this makes me wonder if perhaps you were not in the proliferating fibroblast stage when radiation was adminstered.
According to information I have gathered from those whom have seen Prof. Seegenschmiedt in Germany. It was noted that if one has RT and is not in the proliferating fibroblast stage then RT is not successful.
It was explained in this way: it is like spraying weed begon on a lawn with no weeds. It will not kill weeds if they are not actively growing and it will not kill weeds that start to grow after they have have been sprayed. as stated above Im no expert.

Once I learned of this vital piece of information I did send Prof Seegenschmiedt an email to confirm this and to determine how one knows when they are in this stage: Below is his response exactly as he sated in the email. I simply copy and pasted it here.

My question:
How can I identify if I am in the proliferating fibroblast stage?

His Answer:
As a patient you are NOT able to distinguish between the different phases and
the four stages of DUPUYTREN DISEASE; this requires palpatory and clinical
skills, which experienced doctors develop over several years of practice work.

Edited 01/10/14 22:23

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