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New here. Worried. Scared.
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05/03/2010 04:53
Bronco 
05/03/2010 04:53
Bronco 
New here. Worried. Scared.

Hi,

I've been diagnosed with Dupuytren's. I have a large lump on my palm that is painful, contrary to what I've been reading about the disease. Also contrary to what I've read, it developed rather quickly, over the course of a few days.

I was an avid golfer but given my experience so far I doubt I'll be able to continue that pasttime.

Grasping objects such as glasses or doorknobs causes pain to the nodule.

My doctor in Winnipeg has not suggested any treatment thus far. The next step is to go back in October 2010 to re-visit my condition.

I don't know if anyone else feels the pain that I do from the nodule but what I've done to allow myself to function somewhat normally is to buy fingerless weightlifting gloves which have a padded palm. They were only $12 made by Tempo Fitness. They're neoprene gloves for the most part with a felt-like padded palm.

With the glove on, I am able to open doors, grasp objects, and do what I need to do without getting the sharp pain from the nodule coming into contact with something.

Just thought I'd pass this along in case anyone else feels the pain I do.

I'm sure I'll be coming back with more and looking for support as the disease progresses.

About me: 42 year old male. Canadian born. Parents of Russian and Ukrainian descent. 2 brothers 1 sister. Both brothers have relayed stories of lumps on their hands, near the finger joints but not on the palm. Those have not become troublesome for them. They are both older than me. I'm the baby of the family.

05/03/2010 20:55
lori 
05/03/2010 20:55
lori 
Re: New here. Worried. Scared.

I know just how you feel. My nodule developed and was extremely painful over a few short weeks. Anything that touched it hurt. I also had pain in my shoulder and arm from it. My cord developed in about 2 months. Total time from a sore spot to a 3 inch cord and puckering was under 6 months. Keep an eye out on it and take pictures weekly to chart the progression. You will lose track of time and what it looks like.

I have posted about my RT and how successful it was. I was diagnosed in March 2009 and told to wait until contracture had occured. I was losing my grip, my ability to play golf and tennis, chopping vegetables, etc.. I also wear fingerless biking gloves with a padded palm and it still helps. All the doctors I saw said to wait. It is easy for them to say wait, but it was seriously interfering in my work and life. I feel that if I had waited even 6 more months I would have missed the opportunity for radiation treatment and would have had to had NA, because of the speed my cord was developing and showiing signs of puckering and drawing in my middle finger.

After RT I have regained the use of my hand back without pain. I will be attemtping golf and tennis this spring. I will be wearing a padded glove so it should be interesting to see my golf score. I am nervous about starting to play again but feel I can start slowly. If I find more golf balls than I lose I will consider the game a success!!

Lori

Edited 05/04/10 00:00

05/04/2010 02:50
flojo 
05/04/2010 02:50
flojo 
Re: New here. Worried. Scared.

My experience is similar to Lori's. I had needle aponevrotomy/NA in March 2009 to release Stage I contracture. I had been diagnosed about 6 months earlier. That released the contracture, but it was the RT that I had in July 2009 that gave me better grip again, reduced nodules, less tightness, no more itchy feeling in my palm, no further contracture so far. My Dupuytren's was in my palm and up into the first joint of almost every finger, especially my thumb.

I was fortunate in that I did not have pain, only some aching at night. On a scale of 1-10, it would have been a 1 or 2.

Consider RT if it is an option for you. Early stages and while it is active is the best time to have RT.

05/04/2010 05:59
wach 

Administrator

05/04/2010 05:59
wach 

Administrator

Re: New here. Worried. Scared.

Bronco,

while your family stories might indicate Dupuytren's the fast development of your nodule is very unusual and might point to some other disease. You might consider a second opinion on the cause of your nodule before starting treatment. You might also have a look at this web site, specifically at the section "First rule out other causes" on http://www.dupuytren-online.info/dupuytr..._therapies.html.

Wolfgang

Bronco:
Hi,
.. Also contrary to what I've read, it developed rather quickly, over the course of a few days.

... 2 brothers 1 sister. Both brothers have relayed stories of lumps on their hands, near the finger joints but not on the palm. Those have not become troublesome for them. They are both older than me. I'm the baby of the family.


Edited 05/04/10 17:55

05/04/2010 14:33
callie 
05/04/2010 14:33
callie 
Re: New here. Worried. Scared.

Bronco,

Did the doctor rule out a ganglion cyst? That is what it sounds like, rather than Dupuytren's.

05/07/2010 14:04
Bronco 
05/07/2010 14:04
Bronco 
Re: New here. Worried. Scared.

Hi,

Thank you for your words of support. I'm just feeling kind of lost with this thing. Usually you go to your doctor and leave with some sort of treatment or advice on how to improve the condition. I've never been faced with being sent on my way with nothing more than making another appointment 6 months down the road.

My doctor's first and only diagnosis was Dupuytren's. I don't recall him thinking it was a cyst or infection of some sort.

I'm not waiting until October to go back to him. I actually have an appointment for a biopsy on an unrelated matter involving removal of a spot that's changed colour recently. I will press him for further treatment options, introduce the ganglion cyst possibility, and ask where I can go for a second opinion.

The weightlifting glove is the best thing I could have done for my condition and would recommend it for anyone else who feels pain or discomfort from a palm nodule.

Thanks again for your support.

I'm new here and can't offer much in the way of treatment options but what I can do is keep all of you in my thoughts and wish everyone here all the best in seeking treatments and managing your Dupuytren's.

05/07/2010 14:37
callie 
05/07/2010 14:37
callie 
Re: New here. Worried. Scared.

Bronco,

Keep in mind that a very large percentage of people with Dupuytren's don't have it progress much past the stage you are experiencing. That is the reason for patience. Don't abuse/stress your hands needlessly.

There is much information on the web about ganglion cysts. Check it out. But, if it is Dupuytren's don't get too excited.

05/07/2010 15:02
LubaM. 
05/07/2010 15:02
LubaM. 
Re: New here. Worried. Scared.

Bronco,

If after a second opinion you are diagnosed with Dupuytrens, keep a close watch on your hand and look for signs of activity, i.e. burning, itching, dimpling on the palm or fingers, cords, additional nodules or bumps. If there is activity, consider RT before you get any contractures. Don't let any Drs. or surgeons tell you to wait until your fingers are contracted. RT can be very effective in stopping the progression of Dupuytrens.

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