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Newbie with Q about Drs and RT
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08/30/2012 11:40
TraciG 
08/30/2012 11:40
TraciG 
Newbie with Q about Drs and RT

Hello.
I have had DC for almost 2 years. I immediate saw my Dr. then my orthopedist, then a hand surgeon specialist. The specialist is the one who did the final diagnosis. She said, it will take years for the disease to progress.. lol Well, its taking a short time, and the nodules I have are getting larger.
I can flatten my hand, and have no issues with fingers yet. SO, this is where my Q comes in.

I live in Update NY, and no one offers RT here. I have talked to another hand specialist, who said I have to wait until it gets worse, then have surgery. That is not an answer.. If I have an option now, to slow the progression before it gets bad, why wouldn't that be an option?
So.. I have done reading, and research, and have seen that the Virgina Commonwealth University does this RT procedure.


If anyone has gone about having any kind of therapy in another state (or country).. how do you go about getting this setup? Just make a phone call?

08/30/2012 14:04
Gweneth 
08/30/2012 14:04
Gweneth 
Re: Newbie with Q about Drs and RT

TraciG,

In my case, I was lucky because my insurance allows me to self-refer to a specialist. Since Dr. T at Scripps La Jolla was "in network", I was able to call directly and set-up an initial consultation appointment, without having go to through any of my other doctors. Then once my insurance gave preapproval, I was also able to schedule my appointments for the actual RT, wtihout having to go through any other levels of doctors.

If you are going to try and use insurance, you need to know why your policy's requirements are, because some require referals to see a specialist.

Gweneth


TraciG:
Hello.
I have had DC for almost 2 years. I immediate saw my Dr. then my orthopedist, then a hand surgeon specialist. The specialist is the one who did the final diagnosis. She said, it will take years for the disease to progress.. lol Well, its taking a short time, and the nodules I have are getting larger.
I can flatten my hand, and have no issues with fingers yet. SO, this is where my Q comes in.

I live in Update NY, and no one offers RT here. I have talked to another hand specialist, who said I have to wait until it gets worse, then have surgery. That is not an answer.. If I have an option now, to slow the progression before it gets bad, why wouldn't that be an option?
So.. I have done reading, and research, and have seen that the Virgina Commonwealth University does this RT procedure.


If anyone has gone about having any kind of therapy in another state (or country).. how do you go about getting this setup? Just make a phone call?

08/30/2012 14:32
txmike 
08/30/2012 14:32
txmike 
Re: Newbie with Q about Drs and RT

Hi Traci!

I was in pretty much the same place you are. I had nodules and cords and the were forming rapidly. After much research on this board and other websites, I made the decision to email Prof Seegenschmiedt in Hamburg. I sent pics of my hand, nodule measurements, and symptoms. He agreed to treat me and set up the appiontment via email. It has been a year since my first treatment and I have had no new activity in my treated hand. His knowledge and experience with this disease was the main factor in my decision to go to Germany (I live in Texas) and I have no regrets. He and his staff are nothing short of awesome!

Good luck!

--Michael

08/30/2012 17:00
Tusk 
08/30/2012 17:00
Tusk 
Re: Newbie with Q about Drs and RT

Traci,

Like many on here I'm convinced Prof Seegenschmiedt is the best option if that arrangement will work for you.

Otherwise, you can email Dr. Elisabeth Weiss direct at Virginia Commonwealth University and she will answer you to discuss arrangements. She was very prompt and courteous in dealing with me (I ended up treating elsewhere). I've seen a number of folks who had RT through VCU and all were very pleased.

09/05/2012 19:55
TraciG 
09/05/2012 19:55
TraciG 
Re: Newbie with Q about Drs and RT

Thank you Everyone..
I had wondered if its ok if I just start making calls on my own.. without the help of a Dr. in my hometown..

I shall check on my insurance... I think its covered!!

Thanks again!

Traci

09/07/2012 01:14
callie 
09/07/2012 01:14
callie 
Re: Newbie with Q about Drs and RT

My insurance did not cover RT and my appeals were unsuccessful.

09/23/2012 19:32
RetiredTeacher 
09/23/2012 19:32
RetiredTeacher 
Re: Newbie with Q about Drs and RT

Dr. Kline in Boise, Idaho treats Dupuytren's with NA but also works with a radiation/oncologist for RT. That's a really long way for you to go! My insurance did cover the RT. I have Blue Cross/Blue Shield.

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University   measurements   appiontment   preapproval   self-refer   diagnosis   orthopedist   insurance   arrangements   progression   unsuccessful   Commonwealth   specialist   arrangement   appointment   requirements   experience   consultation   appointments   Seegenschmiedt