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Pamper or Ignor?
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08/27/2008 23:54
48 y.o. male

not registered

08/27/2008 23:54
48 y.o. male

not registered

Pamper or Ignor?

hi, so far i have had DC for over 15 years. i have tried to live the same lifestyle with DC as i did before i had DC. im active, like sports, outdoor fun, etc... when i first discovered i had DC(age 33) i decided to not pamper my hands or stop doing activites that i always loved, but knew they werent good for my DC. now im at the point that i will probably have to amputate one little finger soon(mutiple surgeries/NA) and having neither traditional surgery or NA work successfully, i wonder now if i should have pampered my hands, changed jobs when first discovered(tool&die maker), stopped all sports and gave up all activites that use hands and maybe my hands would still be fully functional. then again, maybe they would have still progressed at the same rate and i would have given up my lifestyle for little or no gain. now that i have discovered LH in both feet i have the same thoughts. do i give up my love of rollerblading, hiking, jogging, biking, swimming, hell, even taking the dog for a walk in the hope that pampering them will delay progession? my DC is very agressive currently and i fear if my feet progess anything like my hands have lately, i will be fully disabled some day. my DC was/has always been painful and my LH is also (tight, painful, pins and needles, stabing feeling). interested in if other have similar thoughts. i understand the middle ground is probably best, do some things that dont require using hands, but now having both my hands and feet effected, im wondering, do i attemp any activity at all that might advance my condition and become kinda self-disabled or continue with my active lifestyle and become disabled whenever(or if) that time comes? 48 y.o. male

08/28/2008 17:36
191178 
08/28/2008 17:36
191178 
Re: Pamper or Ignor?

I too have these thoughts,but i believe you must live your life to the full,no matter what. The problem with this desease is nobody knows the prognosis,so as far as I'm concerned I will kick,fight,bite,challenge this rotten condition,I don't think we should let it dictate the way we live our lives.

08/29/2008 16:00
callie 
08/29/2008 16:00
callie 
Re: Pamper or Ignor?

My feelings are different. I have had Dupuytren's and LH for over 15 years. I feel that it is very important to use caution when stretching or exercising the affected area. My LH has almost gone away since I slowed strenuous/high impact activity. I still walk more than 3 miles a day, but no running. Also, shoes are very important to protecting the arch area. Barefooting is very damaging for me.

Same with hands and my Dupuytren's. My problems were accentuated by above normal gripping and lifting.

08/30/2008 16:19
191178 
08/30/2008 16:19
191178 
Re: Pamper or Ignor?

Thank you for your comments,you have been living with this condition much longer than me,and I will certainly take heed!! good luck to you.

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traditional   thoughts   progressed   discovered   condition   functional   Barefooting   exercising   protecting   Dupuytren   accentuated   stretching   understand   interested   successfully   self-disabled   lifestyle   activites   rollerblading   progession