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Radiation therapy
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08/19/2007 21:01
Mamabear55 
08/19/2007 21:01
Mamabear55 
Radiation therapy

Hi:

I am not clear on radiation therapy. Question: Can you receive radiation after NA procedures , once your affected fingers are straight again. If it slows down the progression I would really like that. My pinkie PIP contracture bends back inside of 3 months. Ilive in northern BC and have to fly to Toronto, but cannot afford to go every 3 months.
I would like to intruduce this information to my family doctor who gladly referred me to Dr Binhammer for NA procedures. I am soon going for my 3rd NA in October 2007.
We do have radiologists here an d would really like some printed information for them to read as well as for my own GP. Can you email it to me on PDF format for Adobe reader?

I would be so grateful is someone could answer the above question. My disease progresses so quickly on the PIP finger. The ring finger is a slow pregression. It has been straight for one year now since NA was done in October 2006 in Toronto. The pinkie is the stubborn one. I'd like to know if it is possible to slow it down with radiation, right after an NA produre, while it is still straight???

Sincerely
M. Roberts
mdroberts@shaw.ca

Any information welcome!

10/03/2007 20:07
M.M. Lusk

not registered

10/03/2007 20:07
M.M. Lusk

not registered

Re: Radiation therapy


According to the published studies, radiotherapy works only on cases that have not yet begun to contract. Apparently contracture is accompanied by some physiological change in the Dups tissue that renders it resistant to radiotherapy.

I have had radiotherapy treatment and it didn't work for me. I'd like to hear from others who have had it done.

10/04/2007 04:20
Wolfgang

not registered

10/04/2007 04:20
Wolfgang

not registered

Re: Radiation therapy

I had radiation therapy about 3.5 years ago and at that time had 2 small cords (no contraction yet) and 3 small nodules. All of them growing very quickly. After treatment the cords kept growing but slower, which I attribute to the treatment (right or wrong, I don't know). In any case I have still no contraction. The nodules went away, at least I don't feel them anymore. Cords are a differently built to nodules, cords consist of more collagen and much less myofibroblasts. I personally believe that radiation therapy works best on nodules, the earlier you catch them the better.

Wolfgang

10/04/2007 13:49
Issleib 
10/04/2007 13:49
Issleib 
Re: Radiation therapy

I had radiation too. just over ayear ago on my hands. Small lumps are gone. My 3 or 4 largest are much smaller and softer. I had one cord but no contracture yet to my 5th finger. It's gone too. I finished my feet in Feb. Same story there small lumps gone small remnants of my 2 largest are left but they are soft and easy to stand on. There has been no progression in the radiation area where before it was progressing quickly. And I have a couple new lumps outside the radiation field. For me it was the right decision

Colleen

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