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Stop the curl
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01/01/2009 13:04
domino

not registered

01/01/2009 13:04
domino

not registered

Stop the curl

It grows while you sleep. If your hand is in a curled position during sleep, it stays curled. If you splint your hand/finger(s) straight while you sleep, your hand will not develop the incapacitating curl.
The Dupuytren tissue growth does not contract the hand/digits after it grows. The hand or digit is in a contracted position while the tissue forms (during your sleep) and it is so unflexible that it stays that way. If you are in the early stages, or post operative, then keep your hand flat when you sleep, and even if it relapses/returns, at least you won't have to deal with the incapacitating curl.
Be careful of your choice of restraint so you don't scratch yourself or your 'oops' spouse in your sleep.

01/01/2009 20:05
jimh 
01/01/2009 20:05
jimh 
Re: Stop the curl

I think this is just a theory, but it's a good one. I do notice the progressing when I wake up in the morning and usually spend a few minutes trying to undo it. I wish the medical community would follow up on this line of thought and that someone would do a formal study using night splints.

01/02/2009 06:37
diane s

not registered

01/02/2009 06:37
diane s

not registered

Re: Stop the curl

I agree with this theory as it is consistent with personal experience. I swear I could feel the stuff growing back in the evening after surgeries.

01/02/2009 07:05
wach 

Administrator

01/02/2009 07:05
wach 

Administrator

Re: Stop the curl

This has actually been proposed by Prof. Albrecht Meinel (Germany) in his professoral thesis already in 1979. His theory that the contracture is not an active process but a passive "freezing" of a relaxed finger position is not generally accepted in the medical world but there might be something to it. At least, wearing a night splint helps keepig your finger straight. Advised by Prof. Meinel I am using a simple night splint myself for my left pinkie http://www.dupuytren-online.info/NA_side_effects.html. So far the magic seems to work.

Wolfgang

01/02/2009 19:12
ellenpao 
01/02/2009 19:12
ellenpao 
Re: Stop the curl


My experience is that if I splint after NA, I stay much straighter then if I don't. 4 PIP NAs with splinting, then I got complacent and didn't splint with #5. Big problem - went back to splints after #6, and wear them every night on middle fingers of both hands. Holding steady right now.

01/03/2009 15:51
jocond 
01/03/2009 15:51
jocond 
Re: Stop the curl

ELLENPAO

Did Dr. Pess's office provide you with your splints? Or did you get them somewhere else? I have a tentative N/A appointment at the end of this month with Dr. Pess.

Thanks

Joe

01/03/2009 22:21
whataboutme 
01/03/2009 22:21
whataboutme 
Re: Stop the curl

I have had mild DC for several years, now 50, I have more recently developed DC, according to my GP, in my penis which is proving more of an inconvenience than that in my hands.

Does anyone else have/know of this problem and any relief available.

Cheers

01/04/2009 07:03
newman 
01/04/2009 07:03
newman 

Re: Stop the curl

Hi Australia Calling-whataboutme
This disease is called Peyronies Disease. Have you looked at 'Related diseases' on the left margin of the Dupuytren Society web page for further information.

01/04/2009 22:47
whataboutme 
01/04/2009 22:47
whataboutme 
Re: Stop the curl

Much appreciated....

Thanks

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progressing   appointment   appreciated   professoral   consistent   somewhere   contracted   surgeries   Dupuytren   straighter   dupuytren-online   Calling-whataboutme   experience   inconvenience   incapacitating   information   unflexible   position   complacent   contracture