I am a 37 year old male who was diagnosed at the age of approx. 12 years with what I thought were Dupuytrens but after my wife researching many years later have now found to be called Ledderhose. I have lumps measuring approx. 17mm x 25mm on both feet! I was told my lumps were the largest they had seen on someone of such a young age! Both feet were operated on at the age of 19 and this was the worse experience I have ever had! I was in a wheelchair for over a month and couldn't return to work for 3 months in total!!!! They then grew back to the same size within 6 months!!!! I have a very active life and play many sports and as a whole for some reason only experience pain/spasms in the summer months (in the heat!). After such a painful experience have never returned to the doctors for further treatment as like many of you have experienced I was just fobbed off and told there is no further treatment. Nice to know there are others out there and hope my experience helps people make a decision about surgery. My main worry like many of you is problems in the future and experiencing problems with my hands as I am a decorator by profession and worry this will affect my living in the future - also passing this to my children/grandchildren as I have been led to understand that this skips a generation!!

I am a 28 years old male from Montreal, Canada.
I first noticed a lump in my right foot when I was 25. After 2 years of seeing various professionals, I was diagnosed with Ledderhose(the doctors only felt the lumps tho - no scan). I now have multiple lumps on both feet but the pain is bearable.

No history of Ledderhose/Dupuytren in my immediate family(at least, not that know of). My ancestors were Irish and German.

History of thyroid problems run in my family. I've also been drinking approx 3 glasses of wine daily for the past 3 years - sometimes more on the weekend. However, since I've been diagnosed with Ledderhose I only drink about twice a week and with moderation.

I yet have to find a doctor that knows about Ledderhose in my city. I saw at least 7 different professionals and each time, their knowledge is extremely limited. For now I just want to know if I have Dupuytren and so far, no doctor knows of any way of diagnosing the disease.

I'm so glad I've found this forum - so many useful info. If anyone knows a doctor in Montreal or a nearby city that knows Ledderhose/Dupuytren quite well, let me know :)

Thanks!