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Radiation Treatment in Virginia
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07/27/2009 18:23
ET160 
07/27/2009 18:23
ET160 
Radiation Treatment in Virginia

TrevB suggested that I post this here, rather than the other therapies board....

I have Dupuytren's in my left hand, with nodules, no cords, and I have been researching treatment options. I contacted Virginia Commonwealth University about their radiation treatment for Dupuytren's, and was seriously considering it, but I saw a hand specialist in Maryland last week who advised against it. I'm not sure what to think now. I may wait a few months to see how things progress, but I'm not sure that I want to wait for the Collagenase treatment.

Has anyone had radiation treatment at VCU?

07/27/2009 19:07
Diana 
07/27/2009 19:07
Diana 
Re: Radiation Treatment in Virginia

I have not been treated in VA but I did speak with Dr. Weiss on the telephone a couple of months ago. She was trained in Germany. I think that they do two treatments per day - 5 days - but could be mis-remembering.

Diana

07/27/2009 20:01
lori 
07/27/2009 20:01
lori 
Re: Radiation Treatment in Virginia

I was looking into VCU, since it was the closest to me until I found Dr. Crimaldi in Charlotte, NC. I am in the middle of my radiation regime with him and he follows the German model for treatment. Should you care to travel I can give you some more information about Dr. Crimaldi (see clinics under the RT heading on this site)

Lori

07/28/2009 13:47
Wolfgang

not registered

07/28/2009 13:47
Wolfgang

not registered

Re: Radiation Treatment in Virginia

To ET160:

Radiotherapy is for early stage of Dupuytren's where nodules are growing. Collagenase won't help in that case because it aims to break cords that cause an extension deficit.

If you alreday have an extension deficit, it's too late for radiotherapy. If you have just a growing nodule it's too early for collagenase. All depends on the stage of your disease.

Wouldn't you know whether your nodules are progressing? Some doctors require to observe & measure growth themselves for 3-6 months. I don't see the advantage of a doctor confirming the growth. Wouldn't I know myself whether the nodule grew recently and shouldn't my judgment be trusted by the doctor? But that's just a side comment I have no idea whether that applies to you.

Wolfgang

07/29/2009 19:11
ET160 
07/29/2009 19:11
ET160 
Re: Radiation Treatment in Virginia

Diana, lori and Wolfgang,

Thanks for your responses. I, too, talked with Dr. Weiss at VCU. I may try to go for a consultation in late August. I found nodules on the soles of my feet today, so I see that I also have Ledderhose's. This concerns me some, as I would have to receive double the radiation, if I were to have treatment.

Best,

ET

07/30/2009 18:52
newman 
07/30/2009 18:52
newman 

Re: Radiation Treatment in Virginia

Hi ET, Australia Calling.(In Germany) You do not mention your age- however I would seriously consider RT. In my case I had both hands and both feet treated 5X3 Gy in Essen Germany. I used to have to weaR ORTHODICS but this is in the past. I am really happy with the result. It is now just on 2 years since I had the protocol of treatment.

07/30/2009 20:25
ET160 
07/30/2009 20:25
ET160 
Re: Radiation Treatment in Virginia

I'm late 40s. I hope to get an appointment with the doctor in Virginia in September. I called today to begin the process.

08/04/2009 17:52
bamklv

not registered

08/04/2009 17:52
bamklv

not registered

Re: Radiation Treatment in Virginia

I had treatment at VCU Massey Cancer Center with Dr Weiss for Dupuuytren's in both hands. The protocol was 1 treatment for 7 days in a row ( not including the weekend and includes two cycles of treatment.

My entire experience with the center was exceptional. I am a healthcare provider myself, and was very impressed with their delivery of information to each pattient, as well as their sensitivity to each person's individual needs.

I traveled there from out of town and was provided with a room at the Hospitality House a few blocks from the hospital for a nominal donation. This also included transportation to and from my treatments as well as validated parking for my stay.

My treatment did not result in a noticable change in my condition, but I recommend it as a first option as it is non-invasive.

Hope this helps in anyone wanting to select RT as an option, and needs a provider.

08/06/2009 20:53
CMurzda 
08/06/2009 20:53
CMurzda 
Re: Radiation Treatment in Virginia

I was treated by Dr Weiss at VCU and in my opinion she is a good doctor. I had the 7 day treatment and was able to stay at the Hospitality House for $10.00 a day. If you cannot afford it, they will waive the $10.00 a day charge. I had both hands treated and my feet. I had significant improvement in my feet, all five nodules in 1 foot completely disappeared over a month and the other 2 in my other foot shrunk some. My hands have not improved but have not gotten any worse since the treatment. Dr Weiss stated that the goal was to keep it from getting worse and it might or might not improve in the hands. I was completely satisfied with that. So far so good. The staff is great and will work with you on scheduling treatments.

Hope this helps.

Chris

Edited 01/27/10 21:11

08/26/2009 20:01
moondanc 
08/26/2009 20:01
moondanc 
Re: Radiation Treatment in Virginia

For those who had the radiation treatment in VA-- you have said 7 days-- do you know how many gys (I think that's the correct term) per day? Is this the only treatment or will you go back in a couple months per the German protocol? Did you have a CAT scan or MRI befoe treatment to define the areas of growth? Thanks much for any info,

Diane

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