Trevor,
Unfortunately I believe it is copyright, but the abstract is available on this website: http://www.dupuytren-online.de/downloads...rens_Betz2.PDF
Philip

NICE appear to have attempted issue 3 new consultation documents, unfortunately I am unable to read them this evening, the documents appear to be empty directorities to me. I have emailed NICE to ask them to fix this potential problems, hopefully they will be fixed by the morning?

http://www.nice.org.uk/guidance/index.js...yId&o=12353

If anyone is interested I sent some questions to Ben Doak, NICE's project manager, about the conclusions, his answers are in red

.....questions about the conclusions as follows:

1. “Inform the clinical governance leads in their Trusts”– is this at all onerous for the radiotherapy clinician – will it require them getting permission to perform the treatment from a committee or is the notification purely informational? Does this apply to private clinics? The clinical governance lead in a hospital is usually the medical director. This recommendation is basically to ensure that the hospital is aware that this procedure is being performed. It is not intended to be onerous for the specialist using the technique. Our Programme has a memorandum of understanding with private industry which maintains that our guidance should be followed in private practice where it exists.
2. “Clinicians should provide patients with clear written information “– is this written information to be provided by NICE or is it for individual clinicians to draw up? Would it for example be a good idea to ask ******** the oncologist recently consulted on the procedure to put together this written document for patients? Will these document(s) be available for comment? Clinicians are able to choose what information they use to consent patients. The wording here is relaxed to allow clinicians with good consenting practices to continue doing what they do already. NICE produces a lay translation of the guidance which may be used by clinicians (though they don’t have to use it).
3. “Audit and review clinical outcomes of all patients having ... & section 3.)” – it might be possible for the Dupuytren’s Society or the Dupuytren’s Foundation to provide examples of preevious questionnaires used in previous similar studies which you could use in the development of your audit process? Clearly having an audit process will be very useful for building up a knowledge base of treatment in the UK, I feel it is important to get the questions right from the start given this process might be used for many years. Thank you. It will be useful to see this information. If you could forward this to me, I will pass it on to the team at NICE that develops the audit tool.

Just to remind you, the deadline for feedback on the latest round of NICE consultations on RT for DD is Tuesday 27th July.

Last time around NICE said they were pleasantly surprised with the volume of patient feedback on the consultation. So if you feel you would like to make comments on the consultation, please do so this weekend!

http://www.nice.org.uk/guidance/index.js...cle&o=49554

Thanks,

Philip

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